Category Archives: Life & Death

About Hospitals…and Doctors…and Illness

We were back in the hospital last week.

I say “we” because when my husband goes in, I go in.

And once again, we experienced the “hospital” mentality that says they know best and we know nothing.

Once again, we were proven right but, once again, at the expense of my husband’s health and the cost of 3 days of our lives!

Here’s the deal.

My husband has been hospitalized 40 times since 2001.  The first 15 of those hospitalizations were for surgeries due to bladder cancer.  The rest of them have been the result of repeated infections resulting from his urostomy.  When he gets sick, his fever runs straight up the thermometer and we run straight for Chester County Hospital.

My husband goes septic not in days but in hours and sometimes in minutes.  But we both know the drill and so does our General Practitioner.  Visit the doctor; give a urine sample.  Get a prescription for an antibiotic.  Take one with two Tylenol and take the temp every 30 minutes.  When the temperature hits 101 degrees, head for the hospital.

At the hospital, the same one he has been admitted to over 20 times, the one with the au courant Electronic Medical Records (EMR), the one where they should know EXACTLY what to do, he is admitted, quickly, put on IV fluids and almost immediately, put on IV Zosyn – the antibiotic that is specifically designed to hit the bacteria that make him sick.

At least that’s the way it’s supposed to go.

Every once and awhile we get a doctor (or two or three) who maybe can’t read EMRs or have their hearing aids down and can’t hear me or my husband when we tell them what he needs.  We got “those doctors” this time.  And from Tuesday evening to Thursday evening, my husband was subjected to the wrong antibiotics — antibiotics that made him even more sick, antibiotics he had an allergic reaction to and antibiotics that made him vomit.

During this time, the two of us must have asked, pushed for and demanded Zosyn a dozen times.  Every time we were patronized, told they had to wait for the cultures and ignored.  On Wednesday, I bet the doctor $50 that the cultures would show enterococcus, klebsiella and/or ecoli.  He smiled, shook his head and said we had to wait and see.

Miracle!  Thursday!!

The cultures showed enterococcus and klebsiella.  Then and ONLY then did they hang Zosyn (actually Unisyn but the same drug).  Less than 24 hours later, my husband was back, feeling good, able to sit up, read, eat.  Which leads me to some questions for the medical team at Chester County Hospital.

WTF?

Why do you know this man better than he does or I do?  Why can’t you LISTEN?  Why didn’t you do “Ctrl F, find and read instance after instance of hospitalization to learn that — duh — he cultures the same 3 bacteria every single time?  Why didn’t you believe he needed Zosyn?  Could this be why health care costs are so high in this country?

Are our doctors really deaf and dumb?  

Patients and their families can be troublesome.  They can be demanding and upset and blah, blah, blah.  I get it.  But NOBODY knows the patient or the patient’s history like the patient and the patient’s family.  Our input shouldn’t be ignored; it shouldn’t just “be considered.”  Our input should be factored in to all the other information now readily available via EMR to the medical staff and someone, anyone or how about just one of them, should listen to us.

A letter will be going to the new President of Chester County Hospital.  I love the changes he has brought, the energy and the warmth the staff now exhibit.  But they still have a few things to address….like involving the patient and his family in decisions regarding treatment.  This is a big problem that’s still open even though it is written as a policy in their patient handbook.

Maybe they should all read that before they start their shifts!

 

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Filed under arm wresting, Death & Dying, Healthcare, Life & Death, Love and Marriage, Medical Writing

Our Elected Officials — Still Doing What They Want

I was not surprised when I received responses to my email about labeling  genetically modified foods in grocery stores (see the email below from Senator Bob Casey).  So, per this Senator, they only voted to allow states to decide about labeling GMO foods.  What he forgot to mention was they defeated Bernie Sanders amendment.

As usual, I was disappointed.  

Our Congressmen and Senators have not, to date, represented the voice of the people who are paying their salaries on much of anything so I don’t know why I actually expect our elected officials to represent us and NOT Monsanto, Archer, Daniels, Midland and all of the other megalithic corporations.

I have to confess that our elected representatives did make some progress on a couple of issues related to big business, but they still managed to hurt the very people that most need their representation with votes like the one on nutrition assistance for hungry families.

So Pennsylvania’s elected officials pretty much joined all the other elected representatives to pass a doozie of a Farm Bill.  So what, you ask?  Here’s the down and dirty on the Farm Bill that our elected representatives and Senators did pass – read it and weep.

http://www.organicconsumers.org/articles/article_27654.cfm

As I mentioned, I emailed my elected officials before the vote.  Below are the text of my email and the response from Bob Casey.  I guess he thinks I flunked logic or maybe English is my second language and I will buy the pig in a poke he so aptly puts forward.

Sorry, Bob.  I read you loud and clear.  You should really be ashamed, not just for lying to me, but for lying to yourself.

Bernie Sanders, where are you?

My Email to PA Senators – Bob Casey & Pat Toomey

I am furious to learn that you voted against Sen. Sanders’ Farm Bill amendment to affirm states’ right to label genetically engineered food.

Nine out of ten voters agree that genetically engineered food should be labeled, but you had to side with Monsanto, no doubt because of money the company has contributed to your campaigns and spent lobbying for you.

According to OpenSecrets.org, in 2012 alone, Monsanto doled out $1,034,064 in campaign cash and spent $5,970,000 on lobbying.

If you want my vote, you should consider standing with the people, not the corporations.

From: Senator Robert P. Casey, Jr. [mailto:senator@casey.senate.gov] 

Sent: Thursday, August 01, 2013 7:16 PM
To: XXXXXX
Subject: Response from Senator Casey

Dear Ms.XXXX:Thank you for taking the time to contact me regarding the Farm Bill. I appreciate hearing
from you about this legislation and the provisions that matter most to you.Roughly every five years, Congress reauthorizes the Farm Bill, which governs federal
farm and food policy. The 2008 Farm Bill expired on September 30, 2012. Although the
Senate had passed the 2012 Farm Bill on June 21, 2012, the House of Representatives
did not pass its version of the 2012 Farm Bill during the 112th Congress. For this reason,
on January 1, 2013, as part of the fiscal cliff package, Congress passed a one-year
extension of federal farm programs based largely on the 2008 Farm Bill.

On June 10, 2013, the Senate passed its version of the 2013 Farm Bill. I voted for the bill,
which passed with a vote of 66-27. On July 11, 2013, the House of Representatives passed
on its version of the 2013 Farm Bill. As the Senate and House confer on these bills in order
to reconcile differences between the two versions, please be assured that I will continue to
keep your views in mind. I will also keep your views in mind should the Senate and House
consider an extension of the current Farm Bill.

I have made it a priority to keep Pennsylvania’s agricultural industry and our rural economies
strong to support Pennsylvanian families. I am working to improve the Farm Bill so that it is
more fair and equitable for Pennsylvanian agriculture. I will continue to represent the interests
of Pennsylvanians and urge the passage of comprehensive, forward-thinking legislation.

A number of Senators introduced amendments to the 2013 Farm Bill related to genetically
engineered ingredients or crops. The Senate voted on only one such amendment. Senator Bernie Sanders
of Vermont introduced an amendment that would have permitted states to require that any food
or beverage offered for sale have a label indicating that the item contains a genetically engineered
ingredient. Proponents of genetically modified crops argue that such advances help, among other
things, to combat disease, increase annual yields, keep food prices in check and improve freshness
and taste. At the same time, the significance of making genetic alterations to our food supply is a
serious matter. Foods produced from this process should undergo rigorous safety inspections and
other relevant scientific testing. I understand that some Pennsylvanians are concerned about
consuming foods which have been genetically altered. It is imperative that consumers have accurate
information about the foods they buy for themselves and their families. However, I voted against
Senator Sanders’ amendment because it would have preempted existing Food and Drug Administration (FDA)
labeling regulations, which I believe is the appropriate authority, and also would have hindered
interstate commerce by creating a patchwork of state labeling requirements. The amendment failed
to receive the votes necessary to pass.

Please be assured that I will continue to keep your views in mind as the Senate continues to consider
the Farm Bill during the
113th Congress. As always, I appreciate your views, thoughts and concerns
as they assist me in understanding what is important to the people of Pennsylvania. Please do not
hesitate to contact me in the future about this or any other matter of importance to you.

Bob Casey

United States Senator

 

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Filed under Healthcare, Home Ec on Acid, Life & Death, Politics

The Death of a Friend-Rosella Clemmons Washington

I lost a friend on Monday.

Her name is Rosella Clemmons Washington.  A jazz singer, mother, wife, sister and friend and one of the most joyful people I have ever known.

The truth is, though, that I let her go 18 months ago.  I let my new job, my life, her life, our schedules, get in the way of seeing each other.  And now, I will not see her again until I die.  And I am so very sad that I was not a good friend.  I was a lapsed friend.

Sure, I called.  I left voice-mails.  I sent email and posted on her Facebook page. So, I can try to convince myself that I reached out, I tried.  But I didn’t persist.  I didn’t insist.  I did the polite thing — I didn’t want to intrude.  But somewhere, deep in my bones, I knew Rosella was dying.  And I should have just driven to her house, knocked on the door and fallen together with her into each others’ arms.

If I had, it wouldn’t have changed her outcome.  Rosella had breast cancer.  She beat it once but lost to it in the second round.  She fought.  Chemo and radiation every week.  Every day was long and longer.  She stopped singing, silencing a voice that was so rich, so full, so beautiful that I really believe she is in the heavenly choir, tuning up for her first performance right now.

We met at work 30 years ago.  For 15 of those years, we talked, laughed, celebrated our birthdays, cried, ate out, dined in at each other’s houses.  She was at my daughter’s wedding;  she sang Ave Maria from the balcony with no mike.  There wasn’t a dry  eye in the house.  I was at her wedding and the birth and death of her first child, her daughter, Debra Rose.  She was pregnant with her son the same year my daughter was pregnant with hers.

Cyndy and I were there when Mark Isaiah was born 2 months early  – touched his long, long fingers, nicknamed him ET and hugged the wonderful woman who was his Mom.  Rosella used to hand me Mark Isaiah as soon as I came into the house saying, “he will only stay still for you.”  When he was old enough to walk, little Mark would fling himself into my arms, running his still long, thin fingers through my hair, leaning in for hugs and laughing.

But once we moved to another county and Mark Isaiah started playing sports, Rosella and I had to work hard to find days that worked for both of us.  My schedule was more flexible so I wrapped around hers, going to her house, having lunch with Mama Rose, listening to Rosella brag about her now rapidly growing son, and watching her eyes glow when she looked at him.

But time and tide continued to pull us further apart.  I would go to a concert of hers and drop by to see her at her new home.  Sometimes she would drive out to our house and sit on the deck and give me her wisdom and counsel.  I was struggling at work, doing too much, being trivialized, feeling sorry for myself and not doing much more than complaining.

Rosella frequently opened these counseling sessions with her favorite line for her  stubborn Irish friend, “Does God have to hit you with a 2 x 4 to get you to see what’s right?”  Apparently, the answer was yes.  My sister, and we knew somewhere back in time we had been sisters, was always right, always there to offer advice or consolation and always, always laughing.

So, when I called to sing her Happy Birthday in October of 2012, I got voice mail.  I thought, okay, she’s busy.   But she didn’t call back.  When I called around the holidays to see if we could get together, I got voice mail again but I said I understood.  Holidays, family…but somewhere in the back of my head, a mall voice whispered, “What if…?”  I didn’t answer.  I emailed her instead.

When I called in February and said I wanted to come and see her, there was no reply.  When she finally did call back, she sounded so tired.  She told me she was battling cancer again.  I offered to take her to Philly for treatment but she had to go on weekdays and I was working.  I offered to come up on a Saturday, sit with her, hold her…but she said she was not fit for any company after chemo and radiation.  I told her I understood.  I told her I would do what she wanted me to do but wanted to help.

But she said her friends were helping with the transportation and her church was helping her at home.

I told her I loved her.  She said she loved me too.  And I never heard her voice again.

This morning, I sit here knowing that I should have shoved aside all my reservations, been impolite, driven up to her house and intruded.  Because I might, just once more, have seen, held and hugged this woman who I loved and still love with all my heart.

Rosella’s death has taught me not to wait, not to be concerned about societal restrictions, not to lose another friend without having the chance to say, just one more time, how precious they are to me and how very much I love having them in my life.

Good by Rosella.  I know God was glad to get you back home but I miss you, my sister.

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Filed under Death & Dying, Life & Death, Religion

Rita Pierson: Every kid needs a champion!

I am convinced that my current job at The New Moyer Academy in Wilmington, Delaware is a gift from the Universe.

You see,  in all my other executive positions, Director of Public Relations, Corporate Officer,  Director of Training, not one of these jobs or titles comes close to what I do now.  Sure, I used to be the boss.  I had a job to get done and I learned how to manage teams of Information Technology experts spread across the country, flying from city to city, not seeing my family for months at a time.

I drive to this job every weekday morning.  I sit at one small desk in one small school.   I am the school secretary.

And in my job, at my small desk, I have a chance to make a difference in the lives of children in my school — a school that works with an under served population of children.  A school that has brought me into the lives of these most wonderful, most challenged and most beautiful spirits I have ever spent time with.

Are some of them hard to handle?  Yes.  Are some of them angry? Yes. Are some of them sad, afraid, lonely?  Yes, yes, yes.

But each and everyone of them is special; each is a child with hopes, dreams and desires.  Each of them deserves my respect, my trust and, frankly, my love.

These small ambassadors of life have seen hardships and sorrows most of us will never know.  And they have come through.  They have found a way to patch themselves together, to keep putting one foot in front of the other, to come to school against all odds, to come to learn. And I get the chance to reach out and tell them, every day, how special they are, how glad I am to see them, how very much they can do and be.

I have never been a teacher.  I have been taught.  Grade school, middle school, high school, college, and graduate school have exposed me to some wonderful teachers and some lousy teachers.  I wish Rita Pierson had been one of my teachers not because of her subject matter expertise or her curriculum.

Rita Pierson teaches so much more than lessons, words and numbers.  She teaches about the heart, the spirit and the opportunity that every adult in every school, from janitor and secretary to teacher and Principal, has every day to reach out and touch one child’s life.

Listen and learn and maybe take a chance and build some relationships, too.

Rita Pierson: Every kid needs a champion | Video on TED.com.

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Filed under Inspiring People, Life & Death, Mysteries, Uncategorized, Work, World Changing Ideas

Shane Koyczan: “To This Day” … for the bullied and beautiful | Video on TED.com

Working in a school now, this talk really hit me hard.

Please, if you love kids, if you see the cruelty that bullying can bring, if you want to help ease the pain, share this and share the idea of reaching back for each and every child and helping them to know just how very beautiful they are in all of their differences.

it is those very differences that make each and every child valuable, an enriching experience, an opportunity for the future.

If you are a parent, an educator, an aunt, an uncle, a human being….please…listen and learn and try to figure out how you can help change the dynamic that is growing in our schools.

Help stop bullying.  Help save lives and dreams.

Shane Koyczan: “To This Day” … for the bullied and beautiful | Video on TED.com.

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Filed under Death & Dying, Education, Inspiring People, Life & Death, World Changing Ideas

Shedrow Confessions

This is the story of a beautiful, healthy, former race horse who was sold for slaughter even though there was a viable bid in place to save him, even though this went against the former owner’s wishes.

For all of you who think slaughter is not happening or is “more humane” – this is an article you should read and a blog you should subscribe to.

There are no graphic pictures in this story, just a photo of a beautiful horse, running in his pasture, on a warm sunny day.  Here’s hoping his last few hours and his death were as painless as possible.

Shedrow Confessions.

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Filed under Death & Dying, Education, Life & Death

A Short Lesson in Perspective – The San Francisco Egotist

I am so tired I can’t remember what I ate last night.  I have no energy to do any of the things I know I love –  ride my horse, sew, plan my garden.  I want to sit and absorb hours of mindless television then take two Tylenol PM and go to sleep just to get up and do it again.

I am working again.  And I am doing it again – jumping into the job with both feet, trying to fix everything, manage all the moving bits, save the children and do battle for truth, light and the American way.

Did I mention that I’m tired?

So, I was trying to think what kind of message could I write here that would be uplifting, that would convey the importance of showing up, of being in the harness, of “….getting it done” while simultaneously saying…happy holidays, merry christmas, happy Chanukah, merry kwanzah…get a life.

And I was stuck.  Nothing, nada, no brilliant phrases, no unquenchable urge to write, to tell this story.  Then I read this article.  And I got it.  And I hope that this holiday present from Linds Redding fits you like it fit me.

I have to work, yes.  But I have to find and keep the boundaries that let me live, too.  Thank you Linds!  And happy holidays to you wherever you are now.

A Short Lesson in Perspective – The San Francisco Egotist.

 

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Filed under Death & Dying, Education, Gifts, Inspiring People, Life & Death, Uncategorized, World Changing Ideas

Save Another Horse; Buy A 2013 Calendar

Raise money to save horses from slaughter and get this beautiful calendar.

Rescue a horse without leaving your office or couch.  Buy another calendar this year and help save hundreds of horses from slaughter.

Last year, horse lovers around the world raised $40,000 just by buying calendars.  Let’s do it again, this year.  Let’s save more horses and make a difference in the lives of these wonderful, spiritual animals.

What could be easier?  I asked that question last year…and I’m asking it again this year.

For $19.95, you will get a beautiful calendar and gift and a horse may just get a second chance at life.

Buy one special calendar and you might be able to help save one of the thousands of healthy, lovely and loving American horses that are slaughtered every year.

Offered by Hoofprints.com, the calendar is the result of a group of horse lovers watching horses going to an auction house and deciding to make a difference.   They created a calendar featuring some of the horses they met.

Printed on heavy stock, the photography is exceptional and even more so because of the conditions under which the horses are being held and the pictures are taken.

As with last year’s calendar, each month features another beautiful horse, photographed by well-known professional photographer Sarah K. Andrew.  Every month you meet another horse whose life path should have taken it to fields of clover and sunshine on its back. The horses, thoroughbreds, Appaloosa’s, paints, chestnuts and Belgian, colts, mares, geldings and stallions, are magnificent, proud, standing tall.

Here’s the good bit.  The profits — all of them — are donated to a dedicated fund with One Horse At a Time, Inc.  Money from the sale of these calendars goes to rescue horses — period.

The calendars are available at Hoofprints and only cost  $19.95.  And they make great gifts for anyone who loves horses or just loves animals.

For each of these horses and countless others, the end of their lives is not going to be spent in a warm, sunny field in a forever home.  It will end with a trip to feedlots like Camelot in the middle of New Jersey and a swift trip to Canada or Mexico where horses go to die.  Many of the horses know they are no longer home but they don’t understand what is happening.

The horse lovers who created this calendar understand and are not standing around, watching. They act.

Sarah K. Andrew makes time to photograph every horse sold to the feedlot. Volunteers evaluate the horses the best they can and a large network of horse people distribute photos and descriptions of the horses, from Facebook to feed stores.They work with the owner of the auction to resell the horses who didn’t get a high enough bid to leave the sale.

Since the effort began in November 2009, no horses have shipped to slaughter from the auction house, and well over 2,000 horses have been purchased and re-homed out of just one feedlot.

I can’t buy another horse.  But I can buy a calendar or two.  And so can you.

Please act.  Please help save these horses whose only mistake was being sold by someone who used to love them.

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Filed under Death & Dying, Equestrian Articles, Life & Death, Mid-Atlantic Horse Stories, World Changing Ideas, Writing About Horses

Shaping Our Children’s Lives & Futures

The theory that children are shaped, for life, in the first 5 years of their small lives has been proven to be true.

The effect of how they are loved, taught, held, or hurt can be found in the hallways of our schools, every day.

This essay is one of the best I have seen on the power for good or evil that all adults but especially parents hold when it comes to their children.All adults have the power to kill a small child’s life before it ever begins.  Killing doesn’t mean murdering the body; it means murdering the soul, the spirit and the mind of the child before the child ever has a chance to live and love in our world.

This post clearly states the case for all of us to make the effort to make our children’s lives safe and happy places for them to live, learn and love.  Please read it.  Please share it.  Please try to think about it before you choose (and it is a choice, folks) to snap at your child, to slap your child with words or your hand, to do damage to your child that lives inside of them, forever.

My Dad used to tell me this when I started dating.  “Don’t listen to what they (boys) say; watch what they do.”  This same perspective is what your kids, our kids do every day.  They do NOT do what we say…they do what we do.

Please try to consider the fragility of these wonderful, bright shiny children who arrive so eager, so willing to learn and think about what you teach them.

Think What You Want.

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Filed under Death & Dying, Education, Life & Death, Love and Marriage

No Death; No Fear – Thich Nhat Hanh Was Right

I read Thich Nhat Hanh’s book, No Death, No Fear: Comforting Wisdom for Life
5 years ago.

I got some of it.  No, I got a lot of it.  But I just couldn’t get how I could face death and not be afraid.  Not my death but the deaths of my parents, the deaths of my brothers, Mike and Bob.

I mourned like everyone does.  Crying, missing them, wishing they hadn’t died, regretting the loss of time — time I should have spent with them when they were alive.  I beat myself up for lost opportunities to tell them how much they meant to me, how much I would miss them.  I’ve lived the last 35 years with regret.

I believed what Joseph Campbell wrote in one of his most widely known works, The Power of Myth.  “All life is loss, loss, loss.”

The loss of my parents and brothers was devastating at an almost cellular level.  But here, this morning, in the cool aftermath of violent thunderstorms, I felt something else, some small pull to another view of loss.

In that instant, everything changed. I learned how time works.

It always seemed to move too fast for me.  This morning I discovered that time is neither fast nor slow.  It’s almost opaque.  The word “linear” no longer applies.  It is as though we are wandering through it.  Past, present and future are all there, in the same moment, even when we don’t recognize them.

When I try to analyze this  new relationship with time (having it, losing it, wasting it), I get anxious.  If I just let go, everything I ever thought I knew about time dissolves.

Each moment feels rich, full, amazing.  Listening to crickets chirp now as they always have and always will.  Watching geese gathering now as they always have and always will.  Seeing the meteors of Perseid, Leonid and all the others falling in the late night sky as they always have and always will.  Loving my family — no matter where they are – as I always have and always will.

It is as though this Universe in which we live and die is gently sharing this tiny but profound thought; the ones who have gone ahead are still here, living within the engine of the universe that keeps rolling before, during and after they left this place we call Earth.

It’s funny because for almost half of my life,  I could not hear the Universe at all, could not understand why people so dear to me had to die. The same Universe that just 2 months ago had to hit me in the forehead with a 2” x 4” now whispers to me and I can hear her.  She offers me comfort.  She lifts a corner of the veil of the infinite – the place we came from, the place we will go and lets me peek underneath.  And I soar into it.

Listening to the roar and the sigh of this place, seeing light and dark in their purest forms, leaving this body, being everywhere and nowhere, all at once, knowing, feeling, being  joy.  My very essence, my soul or spirit, if you will,  joins the stream of all others who were and will be.  My body is no longer along for the ride. Aches, pains, cares, shed like my skin as I rise into the infinite.

I went where Jill Bolte Taylor traveled when she had her stroke – part of everything and everything is part of me.  This is what I saw on my brother Bob’s face at the moment of his death.  Ten years old, grinning, blond hair being ruffled in the wind as he turned to wave good-bye to me then walked over the hill behind our barn in Pine Grove.

I knew when I came back to my body, this chair, this room, this morning…I knew that this is the secret of the universe.

I still know.  This is death; this is life ever after.

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Filed under Death & Dying, Life & Death, Love and Marriage, Mysteries